Organización del Mal de Parkinson

Hello Elena,

Wow you seem like such a strong woman! I read your Bios on the Activa Website and saw your web link to your website and was inspired! You were faced with many challenges in life and I guess the saying what doesn't kill you only makes you stronger can definitely apply to you!!!! You should be very proud to have 3 beautiful supportive daughters and a wonderful mother.

I'm writing you because my father is a PD patient and was diagnosed with this horrible disease at 45 yrs old he's 56 this year and still trying to battle it but is seriously considering Activa. I thought I'd write you and ask how these last 2 yrs have been and if your feeling any symptoms come back?

Any info would be greatly appreciated. Thank you again and God bless you and your family

Sincerely

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Julie

Thanks so much for visiting my site and for your kind words.

I feel there is no need to tolerate p.d if you can avoid it.  I waited 17 years but if I was offered to have it 10 years ago, I would had done it.  I'm on the 2nd year of dbs and to be honest with you, I feel I am only getting better,  sometimes I have to remind myself I am 46 although i have  and feel I am 25 years old.

I love riding my bike, i work out, i run, i dance and i am able to write to you thanks to this dbs surgery.

I am not cure, but I sure feel healthy again ....and my last discovery ..I can swim!

yours truly,

Elena Tuero

-------- Original Message --------
Subject: Brother  and Parkinson
o: info@elenatuero.com

MMy brother has had Parkinson's for many years with also having
diabetes. Recently he had open heart surgery to fix the major aota
valve. Two weeks before the surgery his wife told him she wanted a
divorce. She was both ashamed of him and tired of dealing with his
illness. He has a four year old and is so depressed. I started to
learn as much as I can about Parkinson's. THe doctors in Florida are
doing so much research that I have been luckey to have been given so
much knowledge in so short a time. He is in MA and having a hard time
going into Boston for check ups. I feel so sorry for him. All of his
family are in Florida but he does not want to leave his daughter. His
wife does not want him to have long visitations becuase of his illness.
I was so glad to read your story. I have been keeping him informed
about the operation that is available. He is tired of fighting however.
Thank you so much for your article. I moved to a one story house in
hopes he will come here. He at least has agreed to come for
Thanksgiving. It is a start.

*********

Thank you for your time.  I too feel that they are amking stide.  So
much is going on in Florida.  I have attended many of the workshops.  I
wish my brother was here but he still is in MA.  He has not been able to
sell his house.  I am so worried about him trying to drive.  How did you
get around.  He also has diabetic eyes and is legally blind.

********

If he is legally blind, then, legally he can't drive. I hope that you help him get to you safe.

I stop / quit driving 12 years ago voluntarily.  I could not put my children in any danger..I still don't drive not because I can't, i just can't afford buying a car! 

yours truly,

Hello, I am very sorry to know that you  are going through hard times with P.D. but if your doctor gives you the OK, you'll be dancing again.

I had my surgery at Robert Wood Johnson University Hospital in New Brunswick, NJ and my neurologist name is Annette Nieves, MD

I am very glad I was able to answer you questions if any more..just ask.

How did you find out about this site?  can you please let me know if you are to have dbs surgery?

God Bless 

I am very happy to know that you made time to write, thanks for  your kind words Michael, I will let you know if one day I get to exhibit.  My paintings are out of my inst incs, not learned or taught, I guess that is why it is not appreciated by the art galleries.